DAISY Study
Pilot testing of a collaborative Shared Care Model for Detecting
Neurodevelopmental Impairments after Critical Illness in Young Children
Currently, Queensland does not provide any follow-up services to children following a severe illness or injury, despite research showing the significance of emerging, persisting impairments.
The aim of the DAISY Study is to pilot a collaborative, online screening platform and General Practitioner shared-care follow-up model following PICU admission.
We will explore the acceptability of this model with parents and GPs to ensure the best methods for follow-up.
We will also determine those children most at risk and the best times to provide early interventions.
Over 140 patients have been enrolled in the study, who will be followed-up at baseline, 1-, 3- and 6-months post PICU via phone and email, using validated parent-completed neurodevelopmental questionnaires.
This research will lead to a clinical care model of follow-up for PICU survivors that can be applied across Australia and New Zealand.
PICS-p Information - Click Here
This research project is supported by the Children’s Hospital Foundation
Project Investigators:
Associate Professor Debbie Long, Centre for Healthcare Transformation, Queensland University of Technology
Associate Professor Samudragupta Bora, Mater Research Institute, The University of Queensland.
Dr Belinda Dow, Centre for Children’s Health Research, The University of Queensland.
Associate Professor Kristen Gibbons, Centre for Children’s Health Research, The University of Queensland.
Dr James Best, General Practitioner, Chair, Child and Young Person Health Network, Royal Australian College of General Practitioners
Dr Kerri-Lyn Webb, Children’s Health Queensland
Dr Christian Stocker, Children’s Health Queensland
Professor Helen Liley, Mater Research Institute, The University of Queensland
Dr Zephanie Tyack, AusHSI, Queensland University of Technology
Professor Debra Thoms, Centre for Healthcare Transformation, Queensland University of Technology
Associate Professor Luregn Schlapbach, Queensland Children’s Hospital, and Paediatric Critical Care Research Group, The University of Queensland, Brisbane, QLD
Mrs Carolyn Wharton, Consumer
Mrs Lori Anthony, Children’s Health Queensland
Dr Isabel Castillo, Centre for Healthcare Transformation, Queensland University of Technology
If you would like to know more about the DAISY Study, please contact us here.